Day 44

I'm awake early again, as I have been every day lately.  Not sure where this has come from as I was never a morning person, and it's certainly not from Chelsea!  I'm glad to be up early today though to watch Robin Roberts final show on GMA before her stem cell transplant from her sister.  She looks amazing and she has brought so much awareness and inspired so many people to volunteer as donors.  Good luck Robin!

I got some good news at my clinic appointment this week... Winston is out of my life!  I no longer have to be tied to an IV every day at home.  My skin is getting a lot better.  It's still not cleared up, but is finally starting to go away (after almost 5 weeks).  And thank you to my doctor for quickly getting the government to approve coverage for $4000 worth of drugs that I needed.

My energy level is still incredibly low.  I slept pretty much all day yesterday.  It does go up and down and I've been able to get out of the house a little, but the ups still aren't very high at all.

I'm almost halfway to the 100 day mark!

Light the Night Walk

On Saturday, October 20 my family and I will be walking in the Light the Night Walk for the Leukemia & Lymphoma Society of Canada.

Please click here to view our team page and sponsor us for the event.

http://my.e2rm.com/TeamPage.aspx?teamID=338321&langPref=en-CA&Referrer=http%3A%2F%2Fwww.facebook.com%2F

http://youtu.be/4g-XsCTYY8E

Day 29

I've been home for a couple weeks now and things are overall better than they were when I left the hospital, but my days are up and down.  My energy level is pretty low, but I have been able to get out of the house a few times. 

I have needed IV hydration and potassium at home, so I have my very own Winston in my living room and a nurse that comes to hook me up every day.  This lasts about 4 hours each day and will hopefully be able to stop soon.

my morning coffee

Another issue I've had is my skin.  I've had a reaction to one of the drugs I was on which gave me a rash all over that a week and a half later is still lingering.  I have another rash on my chest that may be Graft VS Host Disease.  It was biopsied yesterday and I should have some more information at my clinic appointment next week.  I have had some numbness in my hands and feet that comes and goes and my skin feels so raw that it hurts to get in the bath.  My lips are dry and cracked and nothing will moisturize them.  And by far the most painful issue is yeast infections in my underarms.

Things are slowly getting better and I know I just need to be patient.  It feels like it's been a long haul so far, but I'm only 29 days in and have a long way to go still.  I'm just taking it easy and reminding myself that all of these issues are temporary and I can get through them.

Day 18

I've finally been discharged from the hospital.  I'm still not feeling all that great, but a lot better than I have been.  Over the last week and a half I have had all kinds of issues.  My throat still hasn't gotten better, I spontaneously vomit (no sign of nausea though) and I overall just don't feel well.  But it's so good to be home!