Days 98-100

Well, I made it to day 100, but not without difficulty.

Tuesday, I had my regular clinic appointment and they kept me in the hospital for 2 days.

Lately, I have been having more bad days than good. Most of the bad days I have just been tired and overall just not feeling well, but I have had a few days where I have been really sick and vomiting. Tuesday was one of these days. When my doctor saw me on Tuesday and I had been sick to my stomach all morning he decided that he needed to run some tests. They started with an ECG and a chest x-ray which were both okay. Then I spent the rest of the day waiting around in the cancer clinic for there to be a room available upstairs for me.

The next morning they sent me to endoscopy to take a look in my stomach and do some biopsies to see if they can find out why I've been getting sick. I've had this procedure before and while they said they sedated me last time, I was fully aware of what was going on and extremely uncomfortable. I told the doctor this and he said he'd be generous with the sedatives this time. Well he wasn't lying. I have no recollection of the next two hours of my life, but I've been told I was quite entertaining.

Kendall sweet talked the doctor into letting me out of the hospital the next day since I had gone two days without getting sick and was eating and drinking well, so I am back home now. They hope to have my biopsy results by Tuesday when I go back to clinic (but I'm not holding my breath), however the theory is that I STILL have graft vs host disease. They expected it should be gone and had been weaning me off the Prednisone, but as the dose got lower the symptoms were getting worse... So this means that I am back on a high dose of Prednisone and will most likely have to stay on it for at least another six months... Along with the hunchback, puffiness and extra chins it has given me.  But I'm not dead yet!