Day 70

I just got home from clinic and it was the quickest appointment we've had yet!  It probably helped that we were there an hour early too. 
Anyway, the good news is that the doctor is lowering my dose of Prednisone (steroid).  Once I'm completely off that my face should go back to normal which I'm really looking forward to.  Right now I have 'moon face' caused by the Prednisone redistributing fat in my body to my cheeks and jowls.
The bad news is that the IV I was supposed to be on for 2 weeks, then was extended to 4 is now going to continue for another 2 weeks.  I still have the virus active in my system so I have to continue the medication longer than expected.
Kendall got more attention than I did at clinic today though.  He's been sick for the last few days, so they were more concerned with him and what he has to make sure I don't catch it.  He has a low grade fever and has been back and forth with sweating and chills.  He saw his family doctor who told him it was just some kind of virus and that I should be fine.  My doctor took it a little more seriously and did a test on him to confirm exactly what kind of virus it is.  They did a nasal swab that they told Kendall 'wasn't pleasant'.  The 'swab' they used was long and thin and went in through a nostril all the way down to his throat.  The look on his face when it went all the way down was hilarious!  The things we do for love.  So hopefully by tomorrow we'll know what he has and either be able to treat it or they'll give me something that will prevent me from getting it too.
That's all the updates we have for today.  Back to clinic next week and hopefully nothing eventful happens between now and then.

September is Blood Cancer Awareness Month

Please help by sponsoring me in the Light the Night Walk for the Leukemia & Lymphoma Society of Canada.

On October 20th I will be walking with my family to benefit all 90,000 people affected by blood cancers in Canada.  All those that will be diagnosed every 34 minutes, And those, who every 72 minutes, will die.

Click here to sponsor me in my walk.  Every little bit helps.

Thank you. 

                                                         

Day 59

Well, it's been an eventful couple of weeks... When I last posted I had great news about not needing Winston and getting my hickman line out.  Change of plans. 

Kendall and I had a nice Labour Day weekend planned.  Friday in Grand Bend with his parents, then Saturday in Goderich with my family.  While we were in Grand Bend on Friday I got a call from my doctor.  Apparantly I have CMV.  This is a virus that most of us have in our systems living dormant, however in people with comprimised immune systems it can cause serious illness.  My doctor wanted me to come home to start treatment right away.  So, first thing Saturday morning I was back at the hospital to get my first dose of medication.  Luckily, I hadn't gotten my hickman line out yet, so I'm not getting poked with needles all the time and after they made sure at the hospital that I didn't have any reactions to the medication it can be administered through IV at home.  What was supposed to be a two week course of meds though is now looking like it will be four weeks.

Other than that things are moving along as expected.  Hopefully there won't be any more major complications but I'm just taking it one day at a time.